As I was formatting this list, I realized that these four links represent some of the hardest parts of my life: Crohn’s disease, the particular self-doubt and mental struggles of being an internet content creator, “feeling too much”, and loving someone with early-onset dementia (FTD). I didn’t mean to curate a list of “heavy” links this week, but I think these four items actually appealed to me because of their hopefulness. I hope you’ll find some value in them. With all that said, here are the best things I came across on the internet this week:
Sooo many people have sent me messages and tagged me in posts about Kathleen Baker, the US swimmer with Crohn’s disease. Her story is inspiring! I quit swimming because of Crohn’s disease, so I’m truly in awe of her drive to succeed (and her support system! Her parents and coach are treasures).
This song really resonated with all three of us in Blimey Cow:
If you feel too much, There is Still Some Time “This life – it’s not a contest, not a race, not a performance, not a thing that you win. // It’s okay to slow down. // You are here for more than grades, more than a job, more than a promotion, more than keeping up, more than getting by.”
This Frontotemporal Degeneration documentary is 18 minutes, but if you’d like to better understand what my family is going through, it’s a great overview of the disease and it covers a few different experiences with this particular form of early-onset dementia. My mom’s FTD mostly affects her language and cognitive abilities, but of course it doesn’t end there. I found the four stories they shared to be heartbreaking and eye-opening.. and while it scares me to think about what mom’s future holds, it is somehow comforting to see how other people are living with similar situations.
What’s the best thing you came across this week?